Thank you for visiting the www.PTCregistration.com website (the “Site”) which is operated by PTC Therapeutics Sweden AB, located at Stora Åvägen 21, 436 34 Askim, Sweden, Phone: +46 31 300 61 60 (“we”, “us”, “PTC”). PTC is responsible as the Data Controller for the collection and use of your personal data as collected and/or provided by you via the forms on this Site. We are committed to respecting and protecting your privacy.

This Privacy Statement applies to information collection and use while you are visiting and using the Site. Please read this Privacy Statement carefully in order to understand our views and practices regarding your personal data and how we will treat it. The Privacy Statement also forms part of our Terms and Conditions (the “Terms”) for the Site.

By using the Site you acknowledge the use of your personal data by us as explained in this Privacy Statement. If you do not agree with the use of personal data as set out in this Privacy Statement, or the Terms, please do not use this Site any further. Use of the Site constitutes acknowledgement of this Privacy Statement.

Because of our commitment to the protection of your personal data, we evaluate our privacy policies and procedures to implement improvements and refinements from time to time. We encourage you to check the Site frequently to see the current Privacy Statement and Terms in effect and any changes that may have been made to them. If we make material changes to this Privacy Statement, we will notify you by means of a prominent notice on this Site prior to the change becoming effective.

Personal Data Collected: You do not have to register for a service or program to receive much of the information available through our Site. We collect and use two types of information, that we obtain from you online while you are navigating through or using the online services of our Site.

Personal Information that you voluntarily provide to us via the following ways:

Emails: When you send us an email at info.nordic@ptcbio.com requesting information, your email address and any other personal data contained or attached in your email will be collected and used in order to process and respond to your inquiry as well as stored for future compliance and auditing purposes. Such information may include for example your
name, email address, institution address, and/or telephone number.

Quality and Safety (Adverse Event) Reporting: If you wish to submit a quality complaint or an adverse event report for one of our products, you may send an email to pharmacovigilance@ptcbio.com, and we will collect and process your personal information (name, contact details, job title), with the scope to handle your complaint and/or adverse event report and to follow up with you regarding an unexpected event involving use of our
product. We will also further store and process such reports in order to comply with applicable quality and safety reporting laws and regulations.

Registration to exclusive expert-led educational content: When you register to our expert-led education for healthcare professionals around the world, you will be requested to fill in the online registration form on our Site and share with us some contact details for the purpose of identification and administration of this Site and your subscription to the different
options proposed. Your name and contact information will be collected and used in order to process and manage your application, as well as to confirm your registration to this Site. Such information includes your first and last name, the centre/hospital name, your business email address, your specialty and your country of residence. Upon your consent, we may also use your personal information to send you educational and promotional material and newsletters (subject to any applicable laws and regulations for healthcare professionals in your country) about our websites, meetings, events and activities, including information about other areas of interest and services not specifically relating to neurotransmitter
disorders.

Digital Information (non-identifiable data)

When you visit our Site we automatically collect basic technical information through our automatic data collection tools, which may include cookies and other commonly used technologies. These tools collect certain standard information that your browser sends to the Site such as your browser type and language, access times, and the address of the site
from which you came to the Site. They may also collect information about your Internet Protocol (IP) address, or click stream data within our Site (i.e. the pages you view, the links you click, and other actions taken in connection with the Site). The information we collect through cookies and other means does not individually identify you. This information helps
us improve the functionality of the Site and make your activities more convenient and efficient.

How We Use Personal Data:

PTC will only process your personal information for purposes permitted by applicable laws, which may vary depending on the actual processing activities. The purposes of the data processing activities may include:

Legal Basis of Processing:
For any enquiry relating to the processing of your personal data or if you want to exercise your privacy related rights or withdraw your consent, you can contact PTC’s Privacy Office at: Dataprivacy@ptcbio.com. PTC processes personal information based on one or more of the following legal grounds:

Sharing Information:
We may disclose your personal data to certain third parties listed below, including third parties who provide us with various business services.  We will not sell or otherwise disclose your personal data without your consent, except where such disclosure is reasonably necessary for normal business operations and such disclosure is in accordance with all applicable data protection and privacy laws.

PTC Affiliates
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PTC and its subsidiary companies may also have access to personal data, provided to us by you including through or in connection with this Site for the purposes set out in this Privacy Statement.

Third Parties/Service Providers

We may also disclose your personal data to third-party service providers who provide services to PTC, such as but not limited to:  Website hosting, professional services, including information technology services and related infrastructure, customer service, e-mail delivery, auditing and other similar services as well as to business partners and collaborators.

All PTC Affiliates and any third-party service providers are only permitted to use such data for the purposes of performing services for and on our behalf and in accordance with all applicable data protection laws.

Law Enforcement

In certain circumstances we may be called upon to share your personal data as required or permitted by law to comply with a subpoena or similar legal process or government request, or when we believe in good faith that disclosure is legally required or otherwise necessary to protect our rights and property, or the rights, property or safety of others, including to advisers, law enforcement, judicial and regulatory authorities. We may also transfer your personal data to a third party that acquires all or part of our assets or shares, or that succeeds us in carrying on all or a part of our business, whether by merger, acquisition, reorganization or otherwise.

Regulatory Authorities

In cases where you wish to report any suspected adverse reactions we may use the personal data you provide as necessary to submit complaint or adverse event reports to local and international health or pharmaceutical regulators, and as otherwise required by law.

Data Transfers:

As a global company, PTC operates in numerous countries including Europe, USA, Japan, Latin America and Canada. Personal information about you may be accessible to PTC headquarters as well as to some PTC affiliates outside your country of residence and selected vendors and partners, established in the EU or globally. Your personal information
may be accessed by staff or suppliers in, transferred to and stored at, a location outside your country of residence, in which data protection laws may not afford the same level of data protection as the one granted in your country.

Where PTC processes personal information in countries that may not provide the same level of data protection as in your country of residence, such data transfer will be conducted in compliance with the international data transfer restrictions that apply under applicable data protection laws.

PTC will implement reasonable and appropriate legal as well as technical and organizational security measures to ensure the security of the processing and in particular to protect your personal information from unauthorized access, use or disclosure including, but not limited to, maintaining binding contractual arrangements with all third parties
processing personal information of individuals, for and on behalf of PTC, as well as executing, where necessary, adequate data transfer mechanisms, in the form of standard contractual clauses, as adopted and approved by the European Commission, or by the competent supervisory authorities, with the aim to achieve an adequate level of data protection of the personal information of those individuals and to ensure the security of the processing.

You may contact us at dataprivacy@ptcbio.com, for more information about the safeguards that we have put in place to protect your personal Information and your privacy rights when we make cross-border transfers of your personal Information.

Your Privacy Rights:

In certain circumstances, local privacy laws may give you rights with respect to your personal Information, as described in more detail below. You have the right to request from us to:

For EU residents: In case we do not handle your request timely or if you are not satisfied with our response to any exercise of these rights, you are entitled to lodge a complaint with the competent supervisory authority of your place of residence. Further information and contact details of the European competent supervisory authorities can be found here:
https://edpb.europa.eu/about-edpb/board/members_en.

If you wish to exercise one of the above-mentioned rights, please send us your request in writing to the following address: PTC Therapeutics International Limited, located at 5th Floor, 3 Grand Canal Plaza, Grand Canal Street Upper, Dublin 4, Ireland or send us your request via email to dataprivacy@ptcbio.com.

Security:

The security of your personal data is important to us. All information you provide to us is stored on secure servers and accessed and used subject to our security policies and standards. We take reasonable steps, consistent with generally accepted industry standards, including technical, administrative and physical safeguards to protect the personal data submitted to us from loss, misuses and unauthorised access, disclosure,
alteration and destruction. However, no method of security or transmission over the Internet is entirely secure. You should always use caution when transmitting personal data over the Internet.

Access to your personal information is limited to a restricted number of PTC employees whose duties reasonably require such information and third parties with whom PTC contracts to carry out business activities on its behalf. Our employees have been trained on the importance of privacy and how to handle and manage personal information appropriately and securely.

Data Retention:

We will retain your personal information for no longer than is necessary for the processing purpose(s) for which your information was collected and any other permitted associated purpose. Information may be retained for a longer duration where applicable laws or regulations require or allow PTC to do so. Your information that is no longer needed is either irreversibly anonymized (and the anonymized information may be retained for longer
periods) or securely destroyed.

Contact Us:

If you have any questions, comments or suggestions about this Privacy Statement or our privacy practices, please contact us at: dataprivacy@ptcbio.com.

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